September 26, 2021 - 2:00 pm
Bike Raffle 2pm
Join Woodstock H-D on an 80-mile country ride led by Doug Jackson. The ride will start at Woodstock-Harley Davidson and end at Niko’s Red Mill Tavern with food and live music by LARA BELL BAND
Help Krickett and Doug Jackson in supporting a cause very near and to their heart.
PURCHASE DASH 4 NASH RAFFLE TICKETS TO WIN A 1955 PAN HEAD! Tickets can be purchased at Woodstock Harley-Davidson – 1 for $25 or 5 for $100. 100% of funds will be donated to life-saving gene therapy treatment for a rare disease call SMARD (www.smashsmard.org). The bike giveaway will take place on September 26th at our second Dash 4 Nash.
Nash Stineman, from Lincolnshire, IL is a 4 year old and suffers form an ultra-rare neuromuscular disease called SMARD. He is the only person in IL ever diagnosed. Nash inherited a bad copy of his IGHMBP2 gene from both parents and there are no available treatments or cures for this rare form of Spinal Muscular Atrophy. It has been described as ALS in infants and is typically fatal in infancy.
SHS Alumni Brittany Stineman 03′ and Bobby Stineman 01′ started a non-profit called smashSMARD in a desperate attempt to fund life-saving gene therapy research! They have participated with Nationwide Children’s Hospital, and this therapy should be available in 2020, if funding goals are met. Please help us #SaveBabyNash! For more information, please visit www.smashsmard.org.
1040 Lake Avenue
Woodstock, Illinois 60098